Program Title:
Advocacy Services
WI CCC Plan Related Chapter / Priority:
Chapter 4: Quality of Life
Priority B: Provide education that will enhance the understanding of the importance of quality of life in the treatment continuum.
Chapter 5: Palliative Care / End of Life Issues
Priority B: Provide education that will enhance the understanding of palliative care in the treatment continuum.
Chapter 6: Data Collection and Reporting
Priority C: Increase awareness of and participation in cancer clinical trials.
Program Description:
The Center for Patient Partnerships helps individuals and their families who are facing life-threatening and serious chronic illnesses get the care they need to make informed decisions and address issues related to serious health conditions. The Center's comprehensive advocacy services are provided by graduate and professional students enrolled in its interdisciplinary program. These services are supervised by experienced patient advocates and are provided free-of-charge. Through this advocacy program, patients become more effective self-advocates. The Center helps them learn about their illnesses and explore treatment options while accessing quality medical care.
Timeframe:
2008
Collaboration:
Maybe
For More Information, Contact:
Name: The Center for Patient Partnerships
Telephone: 608-265-6267
Website: http://law.wisc.edu/patientadvocacy/services/advocate.html
Program Title:
Finding the Port in the Storm: Guidance for Wisconsin Families on How To Navigate the Health Care System
WI CCC Plan Related Chapter / Priority:
Chapter 3: Treatment
Priority A: Increase access to cancer treatment by reducing economic, geographic, cultural, and system barriers.
Program Description:
The Center for Patient Partnership will develop and test a case-based curriculum.This curriculum will train employee assistance program counselors and human resource personnel on how to teach Wisconsin employees and families to more effectively navigate the health care system. An online consumer health care self-advocacy will include topics such as how to communicate with health care providers, make informed medical decisions, and sort out financial, legal, and employment issues related to serious illness. In late 2008, The Wisconsin Alumni Association will market the guide to its members.
Timeframe:
On-going/continuous
Collaboration:
Maybe
Duplication:
Maybe
For More Information, Contact:
Name: Mary Michaud, Director of Evaluation and Policy
Telephone: 608-265-6267
Website: http://www.patientpartnerships.org
Program Title:
Health Care Tips in Hmong and English Brochure
Health Care Tips in Spanish and English Brochure
WI CCC Plan Related Chapter / Priority:
Chapter 3: Treatment
Priority A: Increase access to cancer treatment by reducing economic, geographic, cultural, and system barriers.
Program Description:
With sponsorship from the American Cancer Society, The Center for Patient Partnerships identified barriers to health care accesses for local Hmong and Latino communities. Brochures in Hmong and Spanish with English translations include tips for what to do before going to the doctor, what to say to the doctor, a patient’s job when interacting with practitioners, plus other useful resources and patient rights and responsibilities.
Timeframe:
Completed
Collaboration:
No
Duplication:
Maybe
For More Information, Contact:
Name: Jennifer Weber and Sarah Davis
Telephone: 608-265-6267
Website: http://law.wisc.edu/patientadvocacy/resources/multicultural.html
Program Title:
Hmong Health Care Video Entitled:
Body and Spirit: Healing Your Way
WI CCC Plan Related Chapter / Priority:
Chapter 3: Treatment
Priority A: Increase access to cancer treatment by reducing economic, geographic, cultural, and system barriers.
Program Description:
The Center for Patient Partnerships collaborates with health care researchers to promote consumer-centered research and practice. The Center also fosters and disseminates knowledge about consumer-centered care models and practices nationally.
Through funding from Madison's Evjue Foundation, the Center produced an educational video entitled Body and Spirit: Healing Your Way, exploring health and healing from a holistic perspective. This Hmong language video with English subtitles provides a balanced coverage of traditional Hmong practices while promoting effective self-advocacy skills to better navigate the U.S. health care system.
This video will serve to encourage Hmong American patients and shamans, as well as, mainstream healthcare providers, to embrace both Hmong tradition and contemporary medical science in an open-minded fashion. Hmong American's from a variety of backgrounds-shaman, nurse, patient, and elder speak about the need to exercise, to reduce the intake of sugar and fats, and to make preventive visits with their doctors.
Timeframe:
Completed
Collaboration:
No
Duplication:
Maybe
For More Information, Contact:
Name: The Center for Patient Partnerships
Telephone: 608-265-6267
Website: http://law.wisc.edu/patientadvocacy/resources/multicultural.html
Program Title:
The Komen Advocates Training Program
WI CCC Plan Related Chapter / Priority:
Chapter 3: Treatment
Priority A: Increase access to cancer treatment by reducing economic, geographic, cultural, and system barriers.
Program Description:
The Komen Advocates Training Program is a new initiative to train breast cancer survivors as patient advocates. Nine breast cancer survivors have volunteered to become the first “class” of Komen Advocates and are currently completing a series of workshops and readings to support their practical case management experience.
Through this program, Komen Advocates-in-Training work directly with patients diagnosed with breast cancer to develop the skills and knowledge necessary to effectively advocate for others. During their training, Advocates-in-Training complete a new curriculum for peer health advocacy. At this time, Advocates-in-Training work closely with professional patient advocates as well as other Advocates-in-Trainers, receiving mentorship, guidance and support.
Advocates-in-Training will learn to:
- Work with newly-diagnosed patients to better understand diagnoses, identify treatment options, and plan next steps.
- Help clients make health care decisions that reflect their own values.
- Help patients effectively navigate local or regional health care systems.
- Help patients communicate effectively with providers, insurers, loved ones and others.
- Work with UW professional students, providing perspective and guidance on their journey towards patient advocacy.
Timeframe:
Ongoing
Collaboration:
Maybe
Duplication:
Maybe
For More Information, Contact:
Name: Mary Michaud, Director of Evaluation and Policy
Telephone: 608-265-6267
Website: http://www.patientpartnerships.org
